Parents, use this page to find relevant information and resources for those with disabilities. Click on the name of the organization to be directed to their website.
DISABILITY ORGANIZATIONS
Muscular Dystrophy Association
MDA is fighting to free individuals — and the families who love them — from the devastating effects of muscular dystrophy, ALS and related life-threatening diseases so they can live longer and grow stronger.
Rocky Mountain Rett Association
RMRA is organized for the primary purpose of funding research for the development of treatments and cures for Rett Syndrome and related MeCP2 disorders. We also promote other related activities that provide support and advocacy to area families.
The Autism Society of Colorado aims to improve the lives of all affected by autism. This includes families, providers, educators, and members of the community. At ASC, we work to advocate, inform, and share the journey with thousands of Coloradans.
The Muscular Dystrophy Family Foundation
The Muscular Dystrophy Family Foundation (MDFF) increases the quality of life and independence of people with Muscular Dystrophy, as well as empowers their families, through advocacy, education, and financial resources.
Parent Project Muscular Dystrophy
Our family-centered approach is at the heart of everything we do. As your participation grows, so does our ability to strategically invest and navigate in the fight to end Duchenne.
Colorado Association of the Deaf
The Colorado Association of the Deaf will advance the civil and human rights for all Deaf people in Colorado through the Veditz Policy Institute by dissemination and training on research findings about educational, vocational, linguistic, and social issues for policy development and legislation.
Spina Bifida Association of Colorado
The SBACO was primarily formed as a support group for Colorado parents, family, and friends of children with Spina Bifida. Over the years, our organization has grown and expanded to include many adults with Spina Bifida as well.
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Rocky Mountain Down Syndrome Association
A society where all members are valued for their uniqueness, respected for their contribution and assured the opportunity and choice to create their own path to fulfillment and success.
Brain Injury Alliance of Colorado
The Brain Injury Alliance of Colorado is the go-to resource for help and services for survivors of an injury to the brain, their families and providers.
EFCO works to ensure that people with seizures are able to participate in life’s experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
Provides innovative teaching techniques and philosophy that continues to have Far-reaching effects on the lives of blind people, taking them to new heights of independence.
The Sie Center for Down Syndrome provides the highest quality of comprehensive care to children with Down syndrome by coordinating medical care, along with therapies including speech, physical and occupational.
Children’s Craniofacial Association
CCA’s mission is to empower and give hope to individuals and families affected by facial differences.
The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating disorders.
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.
Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.
ADVOCACY
EMPOWER Colorado is ran by families and offers support, resources, education and advocacy for families of children who have social/emotional, mental or behavioral challenges.
PEAK Parent Center is a nonprofit that works every day to ensure that all people with disabilities are fully included in their neighborhood schools, communities, employment, and all walks of life.
Disabled Resource Services empowers individuals with disabilities to achieve their maximum level of independence through services supporting advocacy, awareness and access to their community.
Colorado Cross-Disability Coalition
Colorado Cross-Disability Coalition advocates for Social Justice for people with all types of disabilities.
Ability Connection Colorado provides inclusive education, pathways to employment, and support that helps people thrive.
Family Voices Colorado strives to improve access to and quality of health care for children and youth with special healthcare needs.
The Arc of Colorado provides crucial educational information for people with intellectual and developmental disabilities and their families.
Easter Seals Colorado partners with individuals and families to reduce the impact of disability or health challenges and to enhance quality of life.
Foothills Gateway empowers those with cognitive disabilities to achieve their maximum potential. They help individuals plan for their future, advocate for their needs, and connect them with continued support.
LOCATE EXCEPTIONAL DOCTORS, THERAPISTS AND SPECIALISTS
University of Colorado Health aims to deliver the highest quality patient care with the highest quality patient experience.
The Associated Conditions page provided by the National Down Syndrome Society, lists health issues associated with Down Syndrome and resources available as children with Down Syndrome have an increased risk for certain health problems.
Children’s Hospital strives to be a leader in providing the best healthcare outcomes for children. Their modern day mission is to improve the health of children through the provision of high-quality coordinated programs of patient care, education, research and advocacy.
Down Syndrome Specialty Clinics Database
The Down Syndrome Specialty Clinics Database is a resource provided by the National Down Syndrome Society to assist parents in locating clinical providers with specialty services available for patients with Down Syndrome.
Envision’s mission is to enhance the quality of life for people with intellectual and developmental disabilities.
Imagine provides support services to people with developmental and cognitive disabilities including autism, cerebral palsy and down syndrome.
Banner Health is recognized as one of the top health systems in the country for clinical quality consistency provided to patients.
At North Range Behavioral Health, we believe that everyone deserves high-quality treatment that leads to recovery.
Autism Speaks believes children should be seen as children – not a disability. Autism Speaks uses traditional therapies in addition to the play-approach to create a sense of safety and belonging in children. The play-approach has been known to free children from the disability stigma as this unique approach uses activities that are traditional to other children.
The Youth Clinic providers are Northern Colorado’s specialists in the treatment of infants, children and young adults. Whatever your child’s needs, The Youth Clinic will be there for you and your family.
At Trumpet Behavioral Health, we work with parents, educators and healthcare professionals to provide Applied Behavior Analysis (ABA) treatment for children and adults with Autism Spectrum Disorders (ASDs) and developmental disabilities.
The mission of the Chanda Plan Foundation is to improve the quality of life for persons with physical disabilities through direct services and systemic change to access integrative therapies.
Colorado Therapeutic Riding Center
The Mission of the Colorado Therapeutic Riding Center is to change the lives of people with disabilities by promoting their physical, psychological and social well being through equine assisted activities.
Adam’s Camp is a non-profit organization, providing a variety of intensive, personalized, and integrated therapeutic programs for children with special needs and their families as well as recreational programs providing fun, social connections and growth in independence for youth and young adults with special needs.
National Sports Center for the Disabled
We enable the human spirit through therapeutic sports and recreation.
Hearts & Horses uses equine assisted therapies to promote the physical, cognitive, emotional, and social well-being of those with special needs.
CARING FOR THE CAREGIVER
Your partner in caregiving, helping you navigate your way through the challenges of caring for your loved one, whether it is full time, part-time or at a distance. Our goal is to help you get the answers you need as you need them and teach you techniques to help maintain your identity and manage your own self-care.
Tips for recharging and finding balance.
We illuminate the caregivers’ daily challenges to better the lives of caregivers nationally, provide them the assistance they need and deserve, and champion their cause through education, services, research and advocacy.
LOCAL/STATE/FEDERAL
The mission of the Rocky Mountain ADA Center is simply to provide information on the American’s with Disabilities Act (ADA) to individuals and organizations throughout Colorado, Utah, Montana, Wyoming, North Dakota and South Dakota.
Colorado Developmental Disabilities Council
The Colorado Developmental Disabilities Council advocates in collaboration with and on behalf of people with developmental disabilities for the establishment and implementation of public policy which will further their independence, productivity, and integration.
The ADA is one of America’s most comprehensive pieces of civil rights legislation that prohibits discrimination and guarantees that people with disabilities have the same opportunities as everyone else to participate in the mainstream of American life.
Eastern Colorado Services for the Developmentally Disabled is a community centered board serving intellectual/developmentally disabled persons in ten rural counties covering 17,514 square miles.
Colorado Programs for Individuals with Physical or Developmental Disabilities
State resource that provides a list of programs available to children and adults with physical or developmental disabilities.
National Council on Disability
NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities.
Colorado NEMT provides Non-Emergency Medical Transportation and Mileage Reimbursement to eligible customers under Colorado’s Medicaid Program.
FINANCIAL RESOURCES
Child Health Plan Plus (CHP+) is public low-cost health insurance for certain children and pregnant women. It is for people who earn too much to qualify for Medicaid, but not enough to pay for private health insurance.
Medicaid Buy-In Program for Children with Disabilities
The Medicaid Buy-In Program for Children with Disabilities lets families of children with a disability who qualify to ‘buy-into’ Colorado Medicaid for that child.
Children With Life Limiting Illness Waiver (CLLI)
The CLLI program provides Medicaid benefits in the home for children with a life limiting illness. This waiver allows you to seek curative treatment while your child is receiving palliative care.
Accountable Care Collaborative (ACC)
The Accountable Care Collaborative (ACC) is Colorado Medicaid’s primary health care program. It is designed to improve your health and help you get the services you need to stay healthy.
Dental services are a program benefit for Colorado Medicaid members of all ages.
Children with Autism Waiver (CWA)
A waiver is an extra set of Medicaid benefits that you could qualify for in certain cases. These benefits can help you remain in your home and community. Waivers have extra program rules and some programs may have waitlists.
This outreach and case management model takes into account that many families have one child enrolled in Medicaid while another is enrolled in CHP+.
Colorado Medicaid is public health insurance for low-income Coloradans who qualify. Colorado Medicaid is funded jointly by a federal-state partnership and is administered by the Department of Health Care Policy & Financing.
Early and Periodic Screening, Diagnostic and Treatment (EPSDT)
The Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit provides comprehensive and preventive health care services for Medicaid members age 20 and under along with pregnant adults.
Pediatric Personal Care Services
The Pediatric Personal Care Benefit helps Colorado Medicaid (Medicaid) members 20 years old and younger with in-home, non-medical support with daily living activities, such as bathing, dressing, meal preparation, and toileting.
Health Insurance Buy-In Program (HIBI)
HIBI is a premium assistance program for Colorado Medicaid clients. It sends monthly payments to you for all or a portion of the cost of your commercial health insurance premiums, and in some cases also reimburses you for deductibles, co-insurance, and co-payments.
The Colorado School Health Services Program is run by the Department of Health Care Policy and Financing (Department) and the Colorado Department of Education.
The Presumptive Eligibility (PE) program gives children under 19 and pregnant women temporary Colorado Medicaid or Child Health Plan Plus (CHP+) medical coverage right away. Your temporary medical coverage lasts for at least 45 days while we process your Medical Assistance application.
My services empower parents and guardians to get the most out of all available resources and put appropriate plans in place to allow their child to live the most fulfilling life possible, all while taking the needs of their entire family (including themselves) into consideration.
Kids Mobility Network is a 501(c)3 non-profit organization providing children with disabilities with durable medical equipment such as wheelchairs, walkers and other medical equipment. We operate our organization with caring and integrity.
Colorado Fund for People with Disabilities (CFPD)
The Colorado Fund for People with Disabilities seeks to enhance the independence and quality of life for people who are elderly or disabled and their families.
Some cases of CP are caused by medical negligence and we help parents get in touch with organizations that can help them find financial help for raising their child with CP.
KEEP YOUR MEDICAL INFORMATION ORGANIZED
The Quick Guide to a Care Binder provides you with a tool designed to help you manage your child’s healthcare needs. It was designed to make organizing the paperwork associated with your child’s care easier.
The Center for Children with Special Needs: Care Notebook
The Center for Children with Special Needs developed a Care Notebook tool to help organize, coordinate and keep track of information for managing your child’s care.
EDUCATE YOURSELF FIRST
Down Syndrome Pregnancy provides honest, compassionate, medically-reviewed, and information support for those preparing for the birth of a baby with Down Syndrome.
Band of Angels is the world’s largest provider of non-medical information on Down Syndrome.
SCDDS – Early Intervention Program
The Early Intervention Colorado program provides developmental supports and services to children birth through two years of age who have special developmental needs.
My Child Without Limits Support Community
Connect with other families of young children with disabilities.
Center for Parent Information and Resources
The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Food Allergy Research and Education (FARE)
FARE’s mission is to improve the quality of life and the health of individuals with food allergies, and to provide them hope through the promise of new treatments.
CONNECT WITH OTHER PARENTS
A special needs forum support group.
The VIDA Group is a group of Hispanic / Latino parents made to give mutual support to people with disabilities or special needs, their parents, family, and guardianships.
Autism Society of Larimer County
The Autism Society of Larimer County provides numerous resources including great support groups in the Northern area. Click on the link for meeting times and locations.
Parent to Parent of Colorado are families who support each other on the journey of parenting our sons and daughters with special health care needs or disabilities.
National Down Syndrome Society: Affiliates
The National Down Syndrome Society’s mission is to be the national advocate for the value, acceptance and inclusion of people with Down Syndrome.
National Down Syndrome Congress
The National Down Syndrome Congress’s mission is to promote the interests of people with Down Syndrome and their families through advocacy, public awareness, and information.
BLOGS
Blog: Holland Bloorview Kids Rehabilitation Hospital
The Holland Bloorview Blog provides family stories, resources, news, and more for parents of children with disabilities.
The Hopeful Parents Blog was created as a place where parents who understand what it’s like having a child with special needs can connect.
Blog: Support for Special Needs
The Support for Special Needs Blog was created by Julia, a Mother of two special needs children and her friend Dawn, an award-winning blogger. Julia shares topics surrounding raising kids with special needs and to the medical community sharing her story and offering advice on working with special needs families.
COMMUNICATION
Two Little Hands Productions – Signing Time
SigningTime.com believes that when children’s hands are moving, their minds are learning.
Center on Technology and Disability
The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services.
Web-based program clinically proven to increase language, reading and social skills in children with special needs.
FACEBOOK GROUPS & PAGES
My friends and I share videos, quotes and interviews on our Facebook page. I spend my free time traveling the country and interviewing adults and children with special needs. My mission is to show the beauty of our differences while promoting unity.
Hoping it inspires you to look at life a wee bit differently…
#differentisbeautiful
Through the sharing of information, news & resources, we hope to empower our fans with more knowledge and the ability to help spread Autism Awareness to their friends and families. Together, we can solve the Autism Puzzle!
Our goal is to take the fear out of feeding tubes, one Tubie Friend™ at a time.
Spread the Word to End the Word
Spread the Word to End the Word is an ongoing effort to raise the consciousness of society about the dehumanizing and hurtful effects of the word “retard(ed)” and encourage people to pledge to stop using the R-word.
Showcasing the potential for happiness in each smiling face: the HAPPY Faces of Autism!
Communities for Special Needs Parents & Professionals to share info & resources.
Parents of Special Needs Children
This is an open community group for parents, grandparents, family and friends of people with special needs children.
We believe that every child was created unique and beautiful, and we want to celebrate that beauty. The Colorado Angels Pageant is a pageant for all special needs children.
Access-Ability is a charity supporting young people with learning difficulties and/or disabilities in post 16 education.
Parenting Special Needs Magazine
Parenting Special Needs Magazine help parents navigate the uncharted waters of raising a child with special needs. Providing practical tips, sharing life’s lessons, tackling the challenges and celebrating the joys of one of life’s greatest gifts
A safe place to share your stories, experiences, and recommendations with each other.
Connections “The Special Needs Directory”
Connections is a community project which seeks to unite providers in the Special Care Industry to each other in one place and then together provide a Free Directory of those resources to children & families in the special needs community.
OTHER
The mission of Special Olympics Colorado is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendships with their families, other Special Olympics athletes and the community.
The Autism Community Store is a parent-owned autism and special needs resource, a special little shop helping families, teachers and therapists get hard-to-find products for kids with ASD, PDD-NOS, Aspergers, SPD, ADHD and other special needs at reasonable prices.
Numotion provides wheelchair care/repair and is committed to serving the lifelong needs of our customers through individualized health and mobility solutions.
Phamaly Theatre Company’s mission is to inspire people to re-envision disability through professional theatre.
Freedom Concepts has been imagining, designing, and building a full line of special needs bicycles and mobility devices for over twenty years.
Tuck Sleep Foundation is a community devoted to improving sleep hygiene, health and wellness through the creation and dissemination of comprehensive, unbiased, free web-based resources.
GoodHealthwill is a 501(c)3 nonprofit organization that accepts donations of durable medical equipment and healthcare supplies, and provides them to the public thrift-store style.
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Accessible Systems believes in helping families stay in the comfort of their home. They provide a simple plan that will make it possible for your current home to work for you. They provide and install stair lifts, chair lifts, ramps, wheelchair lifts, stairway elevators, bathroom remodels, walk in tubs, walk in showers, elevators, portable ramps, wood ramps, concrete ramps, lift chairs, ceiling lifts, hoyer lifts, DME’s, scooters, grab bars, and stairlifts.
Since 1993, Adaptations by Adrian has been customizing individually made clothing for special needs. They strive to ease dressing challenges of those working within physical limits, to help make daily lives more convenient and easier.
Their goal is to make sure you live a quality life with the right equipment for your medical needs. At I Love Lucys, they offer new & used medical equipment for children and adults. They take email and phone orders and are located right here in Windsor.